Tech for reading help
January 21, 2010
This was at the Consumer Electronics Show in Vegas this year.
This isn’t the first I’d heard of it, but now it’s off the drawing board and on sale.
What About George?
January 11, 2010
From the New York Times (free registration required to see the article, sorry):
WHEN George was a child, his parents were told to put him in an institution. Though it’s not clear whether doctors gave him a precise diagnosis at that time, they said he would never be able to get along in society. His mother visited a couple of schools — including the Willowbrook State School on Staten Island, which later became notorious for its brutal treatment of residents — but ultimately they kept him at home. George’s younger brother, a copywriter in New Jersey, said George was eventually found to be mentally retarded but has not been examined for his disability since childhood.
In retrospect, the choice his parents made may seem like an obvious one, but it went against the prevailing wisdom of the day, and it also raised a difficult question for them: Who would support their son after they were gone?
David Kramer, whose father, Gdal, founded Kramer’s Hardware around 1930, started giving George small chores around the shop — moving the stock, taking out the garbage. According to the accounts of some of our relatives, George had been an unruly child, yet he proved an eager and reliable worker, and over time, his responsibilities multiplied.
Three decades passed and Mr. Abraham, then a young Brooklyn entrepreneur, began expressing an interest in acquiring the store. By this time — 1979 — David was thinking seriously about retirement. “He was ready to teach me the business,” Mr. Abraham recalled, “but there was a ‘but’ — and this was a big ‘but’ — he wanted to make sure that George would be secure.”
Science!!!
November 21, 2009
Dear parents,
I am writing to invite you to participate in an online discussion forum. This is part of a research study about the friendships of children with cerebral palsy (CP).
Results of this study will help professionals (teachers, speech-language therapists, support staff and others) to provide better supports to children with CP to promote their social involvement.
Parents who participate in the study will join in a focus group conversation on an Internet message board with other parents of children who have CP.
If you have a child with cerebral palsy between 5–11 years old, and would like to join in the discussion, or if you have any questions about the study, please contact Adam Bowker at Penn State University.
email: adam.bowker at psu.edu (replace the at with @)
phone: 8l4-865-585o
more cyborg stuff
November 18, 2009
IEEE has a breakdown of the costs to go as close to full-cyborg as it is medically possible at this time.
On being a Cyborg
November 13, 2009
I’ve blogged on Aimee Mullins before. People like her really reinforce my thinking that we need to reassess how we define “disability” as a society. It’s not about differences between what one person can do compared to “normal” people.

She recently wrote an essay about athletes like Oscar Pistorius, who I’ve written about, also. We are augmenting ourselves with technology—both the abled and disabled—and it isn’t going to stop.
The fact is, no two people are the same. And there isn’t one “bell curve” that we can sort people onto, there are countless. Everyone is good at, and poor at, different things for different reasons. And our traditional view of “normal” totally breaks down for individuals who are truly exceptional… beyond 99th percentile (or far below 1st percentile).
As another example (also from South Africa), consider runner Castor Semenya, who is intersexed. Semenya has male genes and features, but she competes as a woman. Unfair? World class athletes are genetic freaks of nature anyway; why are certain specific genetic oddities “unfair” and others are acceptable?
You have to look at how people to how they coexist with their environment. Semenya isn’t “disabled” and, other than having no legs, neither is Aimee Mullins. And just like how materials scientists can engineer carbon fiber legs, architects can add ramps and elevators, surgeons can implant sensory devices… society is comprised of us. We are the raw materials. We can engineer ourselves and our relations with one another to make for a more hospitable world for everyone, even those beyond the top and bottom 1%ile.
Disability in Pop Culture 9—Glee
November 12, 2009

Artie Abrams from Glee
Glee (9pm Wednesdays on FOX) is a musical comedy about a high school glee club. It has a sortof Freaks and Geeks vibe about it in that it talks about the divide and also the overlaps between jock and nerd cliques.One of the members of the Glee Club from the beginning has been Artie.
It has a rather large ensemble cast, so up to this point Artie hasn’t really had an episode yet. Last night it was his turn. The school will only provide a standard bus for the club to go to a competition and the club needs to raise the money to rent a wheelchair-accessible bus
As a bonus, there was a subplot about the evil cheerleading coach allowing a girl with Down Syndrome onto the cheerleading squad. (Also, damn the writers for making the villain of the show into a sympathetic character!) Yes, she has a sympathetic moment even after earlier in the episode she gives a hilariously incomprehensible speech about how wheelchair ramps encourage laziness in the ablebodied students by giving them a way to avoid the stairs.
Invictus
October 30, 2009
William Ernest Henley (1849–1903) was an amputee who persevered despite his disability. He was the physical inspiration for Robert Louis Stevenson’s famous amputee character Long John Silver. His daughter was said to have inspired, and coined the name of, J.M. Barrie’s character Wendy.
Probably his greatest contribution to humanity was this poem about resilience, written shortly after his leg was surgically removed (by none other than Joseph Lister, inventor of sterile surgery) to prevent the spread of a tuberculosis infection.
Invictus

William Ernest Henley
Out of the night that covers me,
Black as the Pit from pole to pole,
I thank whatever gods may be
For my unconquerable soul.
In the fell clutch of circumstance
I have not winced nor cried aloud.
Under the bludgeonings of chance
My head is bloody, but unbowed.
Beyond this place of wrath and tears
Looms but the Horror of the shade,
And yet the menace of the years
Finds and shall find me unafraid.
It matters not how strait the gate,
How charged with punishments the scroll
I am the master of my fate:
I am the captain of my soul.
Fail
October 28, 2009

Disability in Pop Culture 8
October 9, 2009
Ghost in the Shell &
Ghost in the Shell—Stand Alone Complex
The Japanese manga/animé series Ghost in the Shell actually is (at its deepest levels) mostly about people with super-disabilities—although ostensibly the theme is about humans’ relationship with the machines they build and how that relationship changes us.
What is a “super-disability” you ask? Consider South African sprinter Oscar Pistorius.

Oscar, a double amputee, created a stir in 2007 because he came within 0.75s of qualifying for the South African Olympic Team. Not the Paralympics—the Abled Olympics. There was some debate as to whether he should be permitted to compete because his prosthetic limbs give him an unfair advantage.
We’re not quite there yet, but what happens when the artificial becomes better than the real thing?
This is a key question in Ghost in the Shell and Ghost in the Shell: Stand Alone Complex.

